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Although Aneurysm Outreach began primarily as an outreach to aortic aneurysm
victims and their families, our focus is now expanding to include those involved
with brain aneurysms, as well. AOI has added a Frequently Asked Questions (FAQ)
section on brain aneurysms to this site and several brain aneurysm researchers to
our connections and partnerships. These physicians/researchers, as well as
aortic aneurysm physicians/researchers, are available to assist with specific
questions posted either on our Research Questionnaire form or on our upcoming
aortic and brain aneurysm bulletin boards at this site. The third board, a
support network, is being designed and implemented so associates can connect
with others to share experiences and offer support.
Aneurysm research was not funded for many years because scientists assumed that aneurysms only occurred during the late, degenerative stages of hardening of the arteries. With the newly recognized concept of genetic involvement, it's time to move forward with great haste. The gathering of mass amounts of accurate and timely statistics is vital for genetic researchers to find similarities in those affected and eventually discover the gene or genes responsible. The joining of all those who submit this information is also necessary to build strong and united advocacy group to convince governmental agencies to generously support grant funding in all aneurysm areas.
AOI will work toward convincing the medical community to include a "family history of aneurysms" block in their medical intake forms. A check in this block would alert both patient and doctor to take precautions. AOI also has a goal of persuading healthcare organizations and the medical community to support ultrasound screening of the aorta at specified intervals as a person ages. This screening would begin at an earlier age and be performed more frequently for a first-degree relative of an aortic aneurysm victim.
By funding genetic research, AOI will work toward permanently eliminating the devastation created by premature deaths due to aneurysms. Through an awareness campaign those at risk will be alerted so that they can take the necessary steps to assure a longer and healthier life.
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